Just Read!
Posted: Mon Jul 26, 2004 10:12 pm
As some of you might know, and some might now know my little brother was diagnosed with ADHD, ADD, ODD, and PDD 6 week after he was born. He kept having ceasures (sp?) when we brought him home from the hospital and finally decreased to never having them.
Well for those of you who don\'t know, all of these problems happen to his brain. They include (for us anyway): Slow speech; sometimes slurred. Brain development slow; He is 6 and he acts 3. Repetitive (sp?) noise making; Includes clapping for no reason, banging on a table, and other things that make noise when manipulated the right way. No pain; His nerve system is slow also... When he falls and scabs his knee he doesn\'t notice because his nerves dont send a message to the brain of \'Ouch! That hurt, I\'m not going to do it again\' so he just keeps doing it. These problems also cause head banging: Banging his head into objects to comfort himself (ie; Going to sleep, or doing it when he is mad) He sometimes bangs into a pillow or he does it right on cement. Hurting animals and laughing afterwards. He usually hurts our animals by grabing their ears and trying to rip them off their head (yes sounds mean and very hard to imagine. I\'ve thought about getting rid of all of our animals for these reasons.) And I\'m not going to continue because this list could go on for months.
Ever since he was diagnosed with these problems he has had to gone to Iowa City to see the so called \"[i]experts[/i]\" to check up on him. Well today was the day he went so yes I was stuck babysitting all day long and they came home early with the news that they sent him home early cause they felt that everything was fine. and no not as in normal fine, we mean the doctors think that he has been cured. Which we know he hasn\'t. He\'s been acting more and more abnoctuous (sp..!) than usually the last week or two. This means they would take him off all 4 pills he is on now (which calms him down slightly) and he wouldn\'t get any Respite care (Where a social worker comes and takes him to give all of the family a break) his SSI (I dunno what that is exactly,, I think some kind of money fund) and his special education that he gets at school which helps him. Basically if he doesn\'t get that he gets to be a 14 year old at age 25
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We\'re poor and all of those above things give us extra money for my little brother and it helps us get by with the grocery\'s and the other needs for a household. Well since we don\'t make enough to do all that it needs to go to all the bills. Which means for my mom I KNOW she pays first, The water bill, electrical bill, gas bill, phone bill and then all the other extra bills we have which include a new car which is $500 a month. (I don\'t know why they HAD to go out and get a brand new one >_<) and this basically means that we might be loosing everything.
Everything includes.... just that; Everything. No house, no car, no food, no money, no... nothing. I\'m not saying this is a DEFINATE announcement that I am never coming to KG again, no. I\'m just saying if you don\'t see me for a couple weeks then you know what happend to me.
Doctors are still researching and my mom is still cussing their asses out for doing this to us.
[quote name=\'My mom\'](f) Dani (f) says:
their saying he\'s just \"hyper\"...but I will get it straight, dont you worry, you know I dont give up on you boys without a fight![/quote]
So there you have it. My bad news =)
PS: Don\'t feel bad for me, I hate it when people say that to me =( You should feel bad for my little brother for having a life like his.
Well for those of you who don\'t know, all of these problems happen to his brain. They include (for us anyway): Slow speech; sometimes slurred. Brain development slow; He is 6 and he acts 3. Repetitive (sp?) noise making; Includes clapping for no reason, banging on a table, and other things that make noise when manipulated the right way. No pain; His nerve system is slow also... When he falls and scabs his knee he doesn\'t notice because his nerves dont send a message to the brain of \'Ouch! That hurt, I\'m not going to do it again\' so he just keeps doing it. These problems also cause head banging: Banging his head into objects to comfort himself (ie; Going to sleep, or doing it when he is mad) He sometimes bangs into a pillow or he does it right on cement. Hurting animals and laughing afterwards. He usually hurts our animals by grabing their ears and trying to rip them off their head (yes sounds mean and very hard to imagine. I\'ve thought about getting rid of all of our animals for these reasons.) And I\'m not going to continue because this list could go on for months.
Ever since he was diagnosed with these problems he has had to gone to Iowa City to see the so called \"[i]experts[/i]\" to check up on him. Well today was the day he went so yes I was stuck babysitting all day long and they came home early with the news that they sent him home early cause they felt that everything was fine. and no not as in normal fine, we mean the doctors think that he has been cured. Which we know he hasn\'t. He\'s been acting more and more abnoctuous (sp..!) than usually the last week or two. This means they would take him off all 4 pills he is on now (which calms him down slightly) and he wouldn\'t get any Respite care (Where a social worker comes and takes him to give all of the family a break) his SSI (I dunno what that is exactly,, I think some kind of money fund) and his special education that he gets at school which helps him. Basically if he doesn\'t get that he gets to be a 14 year old at age 25
We\'re poor and all of those above things give us extra money for my little brother and it helps us get by with the grocery\'s and the other needs for a household. Well since we don\'t make enough to do all that it needs to go to all the bills. Which means for my mom I KNOW she pays first, The water bill, electrical bill, gas bill, phone bill and then all the other extra bills we have which include a new car which is $500 a month. (I don\'t know why they HAD to go out and get a brand new one >_<) and this basically means that we might be loosing everything.
Everything includes.... just that; Everything. No house, no car, no food, no money, no... nothing. I\'m not saying this is a DEFINATE announcement that I am never coming to KG again, no. I\'m just saying if you don\'t see me for a couple weeks then you know what happend to me.
Doctors are still researching and my mom is still cussing their asses out for doing this to us.
[quote name=\'My mom\'](f) Dani (f) says:
their saying he\'s just \"hyper\"...but I will get it straight, dont you worry, you know I dont give up on you boys without a fight![/quote]
So there you have it. My bad news =)
PS: Don\'t feel bad for me, I hate it when people say that to me =( You should feel bad for my little brother for having a life like his.